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cools #1041919 28th Jul 2017 4:37pm
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Originally Posted by cools
Charlie is the most important thing in this DD, I really feel for the parents and understand their need to keep him around but surely he should be allowed to pass peacefully , without pain, and obviously with mum and dad and family around. A hospice is well used to these tragedies and have everything to hand and staff to make his passing as best as can be. It must be all about him and think now they should stop fighting and be with him in whatever time he has left. Very hard but let him go as think the medical team know what's best for him . Poor babe.


So is the hospice shortening or lengthening Charlie's life? Why is a hospice so important? The medical team got it very very wrong, why listen to them?

Nobody know what Charlie is feeling, that is why we have legal guardians to represent them and in this case the legal guardians are being overruled without any reason whatsoever and without any benefit whatsoever by the same people who have already made incorrect decisions on the matter.

Charlie has a very limited life left and very limited understanding as to what is going on, the parents and the rest of the family have to live with this nonsensical affair for a lot longer.

The parents already know that the treatment could have happened in January and on other occasions but was incorrectly denied, the treatment may have made a significant difference to Charlie.

Do you not feel that the parents will have a sense that their baby has been murdered by the withholding of treatment and delays? Its the ultimate pompous insult not to listen to the parents this time after their shoddy treatment so far.


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Dilly #1041922 28th Jul 2017 6:40pm
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Poor Charlies suffering over now...R.I.P. little one..

Dilly #1041934 28th Jul 2017 8:46pm
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Granny
Quote
Do you not feel that the parents will have a sense that their Baby has been murdered by the withholding of treatment and delays? Its the ultimate pompous insult not to listen to the parents this time after their shoddy treatment so far."


I think from listening to charlies dads speech the other day that they will probably see it in the context of GOSH and the courts denying them a glimmer of hope and possibly rubbing salt into their wounds by not allowing him home to die.
I hope they can feel a degree of pride in at least taking on the fight even though it seems they lost. Heart goes out to them as they watched their little warrior slip away today.


fish5133 #1041937 28th Jul 2017 9:56pm
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Fish, I'm not sure if you think I made the enclosed statement. I didn't, it was DD.

Firstly, is a shame rent-a-mob got involved.

With response, the treatment intended was experimental and had not been used before, according to one reporter this evening. So there was no medical knowledge to back it up.

The parents have battled as much as Charlie has, and a time had to come for his departure from this world, although they tried to cling on to every special moment and continue to do so for as long as they could. The ultimate decision was made and probably for their benefit too, in some ways. It could not go on indefinitely. I do think they could have maybe had a little longer with him in the hospice, but we don't know the situation fully. Maybe they made the very final decision. I hope they were allowed to.

In this case I now see it as an act of compassion but I doubt the pain will ever truly leave them.

God bless little Charlie, it seems the whole world was with him and his mummy and daddy.

Last edited by granny; 28th Jul 2017 10:02pm.

Humankind has not woven the web of life. We are but one thread within it. Whatever we do to the web, we do to ourselves. All things are bound together. All things connect.
~Chief Seattle
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