Forums Forums General Forums A - Z Lifestyle Please could you sign this petition :)

It would mean a lot to myself and my hubby aswell (with regards to Anna) as all the other parents of children born with CDH. Thanks.

Here is the link>

http://epetitions.direct.gov.uk/petitions/33898

What is a congenital diaphragmatic hernia (CDH)?

A diaphragmatic hernia is a birth defect (an abnormality that occurs before birth) that develops as a fetus is forming in the mother's uterus. A congenital diaphragmatic hernia (CDH) occurs when the diaphragm does not form properly. The diaphragm is a thin sheet of muscle that separates the abdomen from the chest. The diaphragm is an important muscle for breathing. When there is an opening in the diaphragm, organs that are normally in the abdomen can be pushed (herniated) through the opening into the chest. Currently little is known about why this birth defect occurs.

What causes a diaphragmatic hernia?

As the fetus grows in its mother's uterus before birth, different organ systems are developing and maturing. The diaphragm forms between the 7th and 10th week of pregnancy. The esophagus (the tube that leads from the throat to the stomach), the stomach, and the intestines are also developing at this time.

In CDH, the diaphragm does not develop properly and some or all parts of the abdominal organs (stomach, spleen, intestine and/or liver) move into the chest. The displacement of these abdominal organs into the chest can affect how the lungs develop and grow.

Most cases of diaphragmatic hernia are believed to be multi-factorial in origin. Multi-factorial means that many factors, both genetic and environmental, are involved. It is thought that multiple genes from both parents, as well as a number of environmental factors that scientists do not yet fully understand, contribute to the development of a diaphragmatic hernia.

Approximately 40% of cases of CDH are associated with other birth defects. The most common is a congenital heart defect.

Up to 20% of cases of CDH have a genetic cause due to a chromosome defect or genetic syndrome. In many of these cases, the child has other birth defects in addition to the CDH.

done,best wishes.

done it all the best

Thankyou so much it really means alot.

signed, good luck

Signed and shared.

Signed up. Wish you all the best.

Signed and shared, let's hope you get lots of support>

Signed, Good luck with your campaign.

Signed, good luck.

Signed Best Wishes

Done

Again thank you all so much it means a lot as our daughter 'Anna' was born with this condition it was undiagnosed all throughout the pregnancy and only picked up at a ante natal scan when at 38 weeks pregnant i asked the consultant to check me over as i didnt feel right and a scan had obviously confirmed it there and then as i was told that day 11th January 2008 that she we be born that day by emergency c section. She was taken straight to special care unit within Arrowe Park Hospital as this is where i had my ante natal and after the team managed to stabalise her as her chances of survival was 1 in a thousand she was transferred to Alder Hey where she had a major operation at 3 days old to but all the organs back in place and her diaphragm repaired. All in all she spent the first 6 weeks of her life in 2 hospitals and all she has to show for it is a scar across her tummy.
So babies arent so lucky some dont make it at all or are born with lots of complications and ongoing health problems.
I had never heard of this condition and myself and husband where in the dark for the first few hours of her life until the consultant who was looking after her came to see us on the ward to tell us what was wrong with her etc

All Done

signed and shared: good luck: