WikiWirral values you and your opinion.
Forum Statistics
Posts1,004,902
Topics74,349
Members12,650
Forums66
Posts in last 24hrs21
Most Online7,831
Apr 8th, 2013
Who's Online Now
56 registered members (alan128, 11 invisible), 1,018 guests, and400 spiders.
Key: Admin, Global Mod, Mod
Social Media : Follow Us


Popular Topics(Views 7days)
382 Red Kite
122 noctorum
New General Forums
Happy Birthday Ste and Jase
by TRANCENTRAL. 12th Jun 2018 11:12pm
Written Warning - Really?
by diggingdeeper. 12th Jun 2018 10:18pm
Paul McCartney
by cools. 10th Jun 2018 7:03pm
Happy Birthday
by sunnyside. 10th Jun 2018 12:17pm
New Wirral History
Davies Street
by Medicdeano. 11th Jun 2018 1:32pm
Submerged Church
by granny. 5th Jun 2018 11:42am
Birkenhead Priory - great place to visit
by yoller. 2nd Jun 2018 12:45pm
Ashville Road Sports Ground
by derekdwc. 26th May 2018 1:14pm
Day School Beckwith Street Birkenhead
by Poolie27. 25th May 2018 5:37pm
Forum Tips
Photo Gallery Forums
Birkenhead Priory / Laird's crane today
Terracotta Warriors 2
Topic Replies
live webcam from africa, a must see
by cools. 19th Jun 2018 7:47pm
More Brexit Lunacy
by casper. 19th Jun 2018 4:35pm
4 x 2gb DDR2 800mhz dimms
by gerrymoore. 19th Jun 2018 3:32pm
The Black Pearl has been shipwrecked..
by diggingdeeper. 19th Jun 2018 12:30pm
Beatties of Birkenhead to close down
by diggingdeeper. 19th Jun 2018 11:54am
Another Parking Ticket
by diggingdeeper. 19th Jun 2018 11:46am
Litter Police : Clean Neighbourhoods Act 2005
by diggingdeeper. 18th Jun 2018 4:32pm
brand new cabin size luggage
by stumpyduck. 18th Jun 2018 8:55am
Safety gate
by lincle. 17th Jun 2018 8:44pm
June
M T W T F S S
1 2 3
4 5 6 7 8 9 10
11 12 13 14 15 16 17
18 19 20 21 22 23 24
25 26 27 28 29 30
Recent Posts : What's On ?
Drive in Cinema, Birkenhead
by fish5133. 4th Jun 2018 10:43pm
Previous Topic
Next Topic
Print Topic
Rate Topic
The Heart breaking story of William McGee #707006
6th Jul 2012 10:37am
6th Jul 2012 10:37am
Joined: Sep 2010
Posts: 236
Eastham
G
goodoldphil Offline OP
Addict
goodoldphil  Offline OP
Addict
G
Joined: Sep 2010
Posts: 236
Eastham
Wirral mum hopes video will help save son's life
I read this story in the Wirral Globe this week and felt really sorry for this lovely young boy and his family and decided to give them a bit more publicity by posting it on this forum to give more people the opportunity to help them.

A WIRRAL mum, whose little boy has a severe muscle wasting disease, is hoping an internet video will save his life.
Kelly Magee, from Prenton, has posted a video on YouTube to educate viewers on her two-year-old son’s condition, Duchenne Muscular Dystrophy, in the hope that they will sign a Government petition.
The 32-year-old is hoping the four-minute montage, which is set to Coldplay's 'Fix You', will tug on people's heartstrings and encourage them to back her petition to fund research into the rare condition.
And Kelly is desperate to spread the word about Duchenne's and highlight the impact it has on its sufferers, including her son William.
She said: "We found out about William's condition last year after he was taking longer to learn to walk and kept falling over.
"I immediately threw myself into fundraising and raising awareness as few people know about it.
"Our petition is basically to get the Government to fund research into Duchenne's.
"It's possible that once the money is there, it could take just a couple of years to find a cure. However we need 100,000 signatures for the matter to even be considered in Parliament so I came up with the idea of a YouTube video.
"The video shows children at different stages of the disease. It's very emotional and heartbreaking to watch but that's what you need to do to make people think about it.

"We managed to get permission from Coldplay to use their song which adds to the impact of the montage."
Duchenne Muscular Dystrophy is a progressive, aggressive muscle wasting condition which is most common in boys.

Symptoms usually begin in the legs and pelvis before the disease slowly takes away all use of the body's muscle, leading to eventual death.
And Kelly, who is also mother to eight-year-old Elizabeth, said her family’s world has been rocked by William's diagnosis but is hoping other parents will support her plight.
She said: "There are around 2,500 children in the UK with the condition. It seems like such a small number but it is horrific and is guaranteed death.

"I would say to other mums out there to imagine waking up every morning and finding out that someone you love has passed away.

"I feel like I am grieving every day for William, grieving for what he has already lost and grieving for his future – he will never be able to give me grandchildren, get married or play football with his friends.

"As a mother, I feel an enormous sense of guilt for also giving my daughter a little brother with this condition.

"She absolutely adores him but how do I explain to her what may or may not lie ahead for him?

"I am hoping that enough people will watch the video and follow the link to sign the petition – we need their help so much."

A family fun day will be held in aid of Duchenne Now on August 19 at White's Farm, Station Road, Thurstaston.

It will take place from 12pm – 4pm and include raffles, donkey rides and makeovers.
That is Williams story please watch his video, it is heartbreaking to think all theses lovely youngsters are not going to live much past the age of twenty This is the link :- http://www.youtube.com/watch?v=yoKPBJhDONc It is called Fix You & William Duchenne.

When you've watched this video if you can see through the tears go to the epetition page at

frown http://epetitions.direct.gov.uk/petitions/14427 The petition is not going too well as yet so if you decide to sign include all members of your family.

There is also a web page with an appeal to buy a song off I tunes for 99p the link to which is http://www.savewilliamduchenne.co.uk/

Sorry if this is a long and rambling post but I was touched and believe many of you will want to help even if you only sign the petition.
This story is also an illustration that we should be grateful for what we have and that there is always someone worse off than youself.



Google Ads
Re: The Heart breaking story of William McGee [Re: goodoldphil] #707009
6th Jul 2012 10:48am
6th Jul 2012 10:48am
Joined: Aug 2011
Posts: 820
wallasey
P
pokerchamp Offline
Wise One
pokerchamp  Offline
Wise One
P
Joined: Aug 2011
Posts: 820
wallasey
very brave woman,hope she gets enough people to sign,good luck.

Re: The Heart breaking story of William McGee [Re: goodoldphil] #708179
10th Jul 2012 12:02pm
10th Jul 2012 12:02pm
Joined: Jun 2012
Posts: 55
New Ferry, Wirral
Spiritdancer Offline
Member
Spiritdancer  Offline
Member
Joined: Jun 2012
Posts: 55
New Ferry, Wirral
That story is so sad.....can't find any words to follow that save that I shall copy it to my facebook in the hope that it will help Kelly get more support.
Thank you for posting this.


"The beauty in our hearts transforms the world around us"
Re: The Heart breaking story of William McGee [Re: Spiritdancer] #708180
10th Jul 2012 12:10pm
10th Jul 2012 12:10pm
Joined: Nov 2008
Posts: 1,781
new ferry
yewgarth Offline
Forum Addict
yewgarth  Offline
Forum Addict
Joined: Nov 2008
Posts: 1,781
new ferry
Signed.


Moderated by  Mod 

Random Wirral Images

Click to View Topic.
Newest Topics
Another Parking Ticket
by fish5133. 18th Jun 2018 1:52am
Holborn Square - Police
by diggingdeeper. 17th Jun 2018 5:09pm
Wirral's Worst Roads?
by DavidB. 15th Jun 2018 8:09pm
Finds from yesterday 13/06/18
by Detecting_wirral. 14th Jun 2018 4:19pm
Anyone have Turnips phone number?
by ultimate. 14th Jun 2018 2:45pm
For Sale & Free
4 x 2gb DDR2 800mhz dimms
by gerrymoore. 19th Jun 2018 3:32pm
brand new cabin size luggage
by stumpyduck. 18th Jun 2018 8:55am
Safety gate
by lincle. 17th Jun 2018 4:00pm
2-stroke engine from strimmer
by Snodvan. 15th Jun 2018 7:09pm
NEXT futon sofa bed
by Gibbo. 13th Jun 2018 10:08am
Member Spotlight
dustymclean
dustymclean
birkenhead
Posts: 442
Joined: September 2013
Show All Member Profiles 
Newest Members
mark_d, Pauline1949, dippydave, Reynshaw43, Diggerkev
12650 Registered Users
Today's Birthdays
No Birthdays
New Wirral Info
Wirral's Worst Roads?
by DavidB. 15th Jun 2018 8:09pm
Anyone have Turnips phone number?
by ultimate. 14th Jun 2018 2:45pm
noctorum
by tayyo1. 13th Jun 2018 8:01pm
Mortgage Deals ?
by fish5133. 11th Jun 2018 7:51pm
Drive in Cinema, Birkenhead
by granny. 1st Jun 2018 8:23am
News : New Topics
Holborn Square - Police
by diggingdeeper. 17th Jun 2018 5:09pm
Keys found - Old Market House
by MisterSmiff. 9th Jun 2018 11:13am
More Brexit Lunacy
by Excoriator. 8th Jun 2018 2:44pm
St James Library Break in
by BandyCoot. 7th Jun 2018 10:37am
Beatties of Birkenhead to close down
by daveybm. 7th Jun 2018 8:37am
New Enthusiast Forums
Another Parking Ticket
by fish5133. 18th Jun 2018 1:52am
Finds from yesterday 13/06/18
by Detecting_wirral. 14th Jun 2018 4:19pm
Red Kite
by granny. 13th Jun 2018 7:35pm
New MOT Rules
by fish5133. 6th Jun 2018 11:55pm
HELP please - wireless printer setup
by Snodvan. 30th May 2018 3:43pm
Popular Topics(Views 24hrs)
Wirral Sunrise Sunset
Sunrise Tue 4:42am
Sunset Tue 9:44pm
Local Time Tue 8:38pm
Powered by UBB.threads™ PHP Forum Software 7.6.1.1