WikiWirral 14yrs online 24/7 365 days a year.
Forum Stats
12451 Members
65 Forums
73745 Topics
996759 Posts
39 posts in the last 24hrs
Max Online: 7831 @ 8th Apr 2013 4:18pm
Who's Online - Click Me
60 registered (alan128, 14 invisible), 1166 Guests and 234 Spiders online.
Key: Admin, Global Mod, Mod
Social Media : Follow Us


(Views 7days)This Weeks Most Read
Insecure sites. 650
Games for children 536
What is your Daily Exercise ? 404
Is this crime against humanity 359
Travelling Bus and Train Which Tickets? 250
Replacement Key Fob casing 231
Charity fishing match 215
Anyone read this ? 215
Taltalk Broadband Dying 208
Fitting bathroom lights need help 162
New General Forums
Telephone Caller Alert - they are NOT BT BROADBAND
by Laraine
17th Nov 2017 6:04pm
Are you a Mathematician ?
by granny
15th Nov 2017 8:59am
Poor Bruce
by diggingdeeper
15th Nov 2017 1:15am
Charity fishing match
by paul110180
14th Nov 2017 8:03pm
New Wirral History
Downloadable oldwirral pdfs
by derekdwc
9th Oct 2017 12:26pm
Forum Tips
Photo Gallery Forums
clipper yachts arriving for round the world race
Azamara,silouette and balmoral this mornig
Topic Replies
What song are you listening to?
by Dilly
Water Dispenser Cold Cool Machine Cooler
by markyport
04:45 PM
Games for children
by diggingdeeper
04:34 PM
John Lewis advert
by venice
12:02 PM
Fitting bathroom lights need help
by Excoriator
09:07 AM
Charity fishing match
by fish5133
11:42 PM
Downloadable oldwirral pdfs
by diggingdeeper
05:02 PM
DIY advice needed
by yr20405
17th Nov 2017 11:23pm
Charity fishing match
by paul110180
17th Nov 2017 9:29pm
November
M Tu W Th F Sa Su
1 2 3 4 5
6 7 8 9 10 11 12
13 14 15 16 17 18 19
20 21 22 23 24 25 26
27 28 29 30
Recent Posts : What's On ?
The Lanterns at Chester Zoo
by granny
16th Nov 2017 1:05pm
bonfire night
by snowhite
3rd Nov 2017 5:40pm
Topic Options
Rate This Topic
#707006 - 6th Jul 2012 11:37am The Heart breaking story of William McGee
goodoldphil Online   content
Addict

Registered: 7th Sep 2010
Posts: 236
Loc: Eastham
Wirral mum hopes video will help save son's life
I read this story in the Wirral Globe this week and felt really sorry for this lovely young boy and his family and decided to give them a bit more publicity by posting it on this forum to give more people the opportunity to help them.

A WIRRAL mum, whose little boy has a severe muscle wasting disease, is hoping an internet video will save his life.
Kelly Magee, from Prenton, has posted a video on YouTube to educate viewers on her two-year-old son’s condition, Duchenne Muscular Dystrophy, in the hope that they will sign a Government petition.
The 32-year-old is hoping the four-minute montage, which is set to Coldplay's 'Fix You', will tug on people's heartstrings and encourage them to back her petition to fund research into the rare condition.
And Kelly is desperate to spread the word about Duchenne's and highlight the impact it has on its sufferers, including her son William.
She said: "We found out about William's condition last year after he was taking longer to learn to walk and kept falling over.
"I immediately threw myself into fundraising and raising awareness as few people know about it.
"Our petition is basically to get the Government to fund research into Duchenne's.
"It's possible that once the money is there, it could take just a couple of years to find a cure. However we need 100,000 signatures for the matter to even be considered in Parliament so I came up with the idea of a YouTube video.
"The video shows children at different stages of the disease. It's very emotional and heartbreaking to watch but that's what you need to do to make people think about it.

"We managed to get permission from Coldplay to use their song which adds to the impact of the montage."
Duchenne Muscular Dystrophy is a progressive, aggressive muscle wasting condition which is most common in boys.

Symptoms usually begin in the legs and pelvis before the disease slowly takes away all use of the body's muscle, leading to eventual death.
And Kelly, who is also mother to eight-year-old Elizabeth, said her family’s world has been rocked by William's diagnosis but is hoping other parents will support her plight.
She said: "There are around 2,500 children in the UK with the condition. It seems like such a small number but it is horrific and is guaranteed death.

"I would say to other mums out there to imagine waking up every morning and finding out that someone you love has passed away.

"I feel like I am grieving every day for William, grieving for what he has already lost and grieving for his future – he will never be able to give me grandchildren, get married or play football with his friends.

"As a mother, I feel an enormous sense of guilt for also giving my daughter a little brother with this condition.

"She absolutely adores him but how do I explain to her what may or may not lie ahead for him?

"I am hoping that enough people will watch the video and follow the link to sign the petition – we need their help so much."

A family fun day will be held in aid of Duchenne Now on August 19 at White's Farm, Station Road, Thurstaston.

It will take place from 12pm – 4pm and include raffles, donkey rides and makeovers.
That is Williams story please watch his video, it is heartbreaking to think all theses lovely youngsters are not going to live much past the age of twenty This is the link :- http://www.youtube.com/watch?v=yoKPBJhDONc It is called Fix You & William Duchenne.

When you've watched this video if you can see through the tears go to the epetition page at

frown http://epetitions.direct.gov.uk/petitions/14427 The petition is not going too well as yet so if you decide to sign include all members of your family.

There is also a web page with an appeal to buy a song off I tunes for 99p the link to which is http://www.savewilliamduchenne.co.uk/

Sorry if this is a long and rambling post but I was touched and believe many of you will want to help even if you only sign the petition.
This story is also an illustration that we should be grateful for what we have and that there is always someone worse off than youself.

Top
Google Ads
#707009 - 6th Jul 2012 11:48am Re: The Heart breaking story of William McGee [Re: goodoldphil]
pokerchamp Offline
Wise One

Registered: 29th Aug 2011
Posts: 820
Loc: wallasey
very brave woman,hope she gets enough people to sign,good luck.

Top
#708179 - 10th Jul 2012 1:02pm Re: The Heart breaking story of William McGee [Re: goodoldphil]
Spiritdancer Offline
Member

Registered: 14th Jun 2012
Posts: 55
Loc: New Ferry, Wirral
That story is so sad.....can't find any words to follow that save that I shall copy it to my facebook in the hope that it will help Kelly get more support.
Thank you for posting this.
_________________________
"The beauty in our hearts transforms the world around us"

Top
#708180 - 10th Jul 2012 1:10pm Re: The Heart breaking story of William McGee [Re: Spiritdancer]
yewgarth Offline
Forum Addict

Registered: 2nd Nov 2008
Posts: 1781
Loc: new ferry
Signed.

Top

Moderator:  Mod 
Random Wirral Images

Click to View Topic.
Newest Topics
Fitting bathroom lights need help
by yr20405
17th Nov 2017 11:29pm
Charity fishing match
by paul110180
17th Nov 2017 9:29pm
Games for children
by granny
17th Nov 2017 1:35am
Are there any doctors or nurses on here.
by granny
16th Nov 2017 11:52pm
Bath Lifts
by locomotive
16th Nov 2017 6:22pm
For Sale & Free
Water Dispenser Cold Cool Machine Cooler
by markyport
04:45 PM
where to get cheap carpet
by mickturner
17th Nov 2017 4:24pm
White radiator single panel 1400 x 600 - good cond
by gerrymoore
16th Nov 2017 9:16am
Samsung Galaxy S7 Titanium Silver + Extras
by j_demo
15th Nov 2017 7:29pm
Vaping set
by paul110180
15th Nov 2017 2:37pm
Featured Member
Registered: 14th Aug 2015
Posts: 20
Newest Members
Norfolk, monadrexx, Dipper, DarioLo, JohnG74
12451 Registered Users
Today's Birthdays
No Birthdays
New Wirral Info
Fitting bathroom lights need help
by yr20405
17th Nov 2017 11:29pm
Games for children
by granny
17th Nov 2017 1:35am
Bath Lifts
by locomotive
16th Nov 2017 6:22pm
The Lanterns at Chester Zoo
by granny
16th Nov 2017 1:05pm
Travelling Bus and Train Which Tickets?
by fish5133
15th Nov 2017 5:31pm
News : New Topics
Anyone read this ?
by venice
16th Nov 2017 3:22pm
Is this crime against humanity
by granny
13th Nov 2017 4:04pm
Wedding for Cancer Research !
by Katemargaret
11th Nov 2017 10:38pm
The EU and us.
by Excoriator
11th Nov 2017 8:44am
Police, St Josephs Primary, Woodchurch Road
by diggingdeeper
7th Nov 2017 3:55pm
New Enthusiast Forums
Charity fishing match
by paul110180
17th Nov 2017 9:29pm
Are there any doctors or nurses on here.
by granny
16th Nov 2017 11:52pm
Taltalk Broadband Dying
by diggingdeeper
15th Nov 2017 3:40am
Replacement Key Fob casing
by fish5133
14th Nov 2017 7:45pm
Insecure sites.
by venice
13th Nov 2017 3:54pm
(Views 24hrs)Trending Newest Topics
Wirral Sunrise Sunset
Sunrise Sun 7:46am
Sunset Sun 4:09pm
Local Time Sun 5:47pm
WikiWirral Can . . . .
Advertising Click me
To Advertise with
Wikiwirral Click Me