WikiWirral Online with you since 2003, fantastic.
Forum Stats
12247 Members
65 Forums
72881 Topics
982431 Posts
88 posts in the last 24hrs
Max Online: 7831 @ 8th Apr 2013 4:18pm
Who's Online - Click Me
75 registered (11kendo, 12 invisible), 1693 Guests and 318 Spiders online.
Key: Admin, Global Mod, Mod
Social Media : Follow Us


(Views 7days)This Weeks Most Read
What happened to Tranmere car bootie? 598
Incident at Westminster 550
Martin Mcguinness dies 534
Alloys refurb and colour change. The Wheel Deal. 473
File too large 397
Council tax bill for this year 2017 395
British troops to Estonia 346
Has anyone fished 310
1882 Plan of the borough of Birkenhead and Wards 296
Petrol Lawnmower to purchase 246
New General Forums
Surely the most honest add.....
by buddy
20th Mar 2017 5:43pm
Happy Birthday DIZDAZDOZ
by snowhite
19th Mar 2017 4:24pm
My old friend the fox
by Dilly
18th Mar 2017 11:15am
charity shop bungle..true story
by fish5133
18th Mar 2017 9:11am
New Wirral History
William Bernard's building, Birkenhead
by yoller
20th Mar 2017 4:27pm
1882 Plan of the borough of Birkenhead and Wards
by Dave_Wood
19th Mar 2017 11:57am
New Brighton Coop
by Mike_White
9th Mar 2017 12:48pm
Tranmere High School for Girls 1882 Chesnut Grove
by sarah708
6th Mar 2017 8:23pm
Whetstone Lane, Birkenhead
by MoretonExpat
6th Mar 2017 8:04am
Forum Tips
Photo Gallery Forums
Birkenhead Transport Museum 24th Feb 2017
fireworks on the Mersey last night
Topic Replies
Incident at Westminster
by granny
Yesterday at 10:34 PM
Offset number plates
by venice
Yesterday at 09:26 PM
'March' Photo Competition.
by fish5133
Yesterday at 08:53 PM
What song are you listening to?
by starakita
Yesterday at 06:07 PM
706 Plough Inn 25and 27 Breck Road Wallasey
by tigertiger1953
Yesterday at 04:25 PM
What are you eating today?
by Dilly
Yesterday at 01:44 PM
Genuine Canada Goose Men's Chilliwack Jacket - L
by Liverpooltiger
Yesterday at 01:14 PM
It's Broken : Forum Update
by lollipop
Yesterday at 08:53 AM
Lee and Cragg Quarries - Bacup
by Mark
Yesterday at 07:43 AM
March
M Tu W Th F Sa Su
1 2 3 4 5
6 7 8 9 10 11 12
13 14 15 16 17 18 19
20 21 22 23 24 25 26
27 28 29 30 31
Recent Posts : What's On ?
Lee and Cragg Quarries - Bacup
by Mark
Yesterday at 07:43 AM
Rufford Old Hall
by diggingdeeper
13th Mar 2017 9:58am
Topic Options
Rate This Topic
#707006 - 6th Jul 2012 11:37am The Heart breaking story of William McGee
goodoldphil Online   content
Addict

Registered: 7th Sep 2010
Posts: 229
Loc: Eastham
Wirral mum hopes video will help save son's life
I read this story in the Wirral Globe this week and felt really sorry for this lovely young boy and his family and decided to give them a bit more publicity by posting it on this forum to give more people the opportunity to help them.

A WIRRAL mum, whose little boy has a severe muscle wasting disease, is hoping an internet video will save his life.
Kelly Magee, from Prenton, has posted a video on YouTube to educate viewers on her two-year-old son’s condition, Duchenne Muscular Dystrophy, in the hope that they will sign a Government petition.
The 32-year-old is hoping the four-minute montage, which is set to Coldplay's 'Fix You', will tug on people's heartstrings and encourage them to back her petition to fund research into the rare condition.
And Kelly is desperate to spread the word about Duchenne's and highlight the impact it has on its sufferers, including her son William.
She said: "We found out about William's condition last year after he was taking longer to learn to walk and kept falling over.
"I immediately threw myself into fundraising and raising awareness as few people know about it.
"Our petition is basically to get the Government to fund research into Duchenne's.
"It's possible that once the money is there, it could take just a couple of years to find a cure. However we need 100,000 signatures for the matter to even be considered in Parliament so I came up with the idea of a YouTube video.
"The video shows children at different stages of the disease. It's very emotional and heartbreaking to watch but that's what you need to do to make people think about it.

"We managed to get permission from Coldplay to use their song which adds to the impact of the montage."
Duchenne Muscular Dystrophy is a progressive, aggressive muscle wasting condition which is most common in boys.

Symptoms usually begin in the legs and pelvis before the disease slowly takes away all use of the body's muscle, leading to eventual death.
And Kelly, who is also mother to eight-year-old Elizabeth, said her family’s world has been rocked by William's diagnosis but is hoping other parents will support her plight.
She said: "There are around 2,500 children in the UK with the condition. It seems like such a small number but it is horrific and is guaranteed death.

"I would say to other mums out there to imagine waking up every morning and finding out that someone you love has passed away.

"I feel like I am grieving every day for William, grieving for what he has already lost and grieving for his future – he will never be able to give me grandchildren, get married or play football with his friends.

"As a mother, I feel an enormous sense of guilt for also giving my daughter a little brother with this condition.

"She absolutely adores him but how do I explain to her what may or may not lie ahead for him?

"I am hoping that enough people will watch the video and follow the link to sign the petition – we need their help so much."

A family fun day will be held in aid of Duchenne Now on August 19 at White's Farm, Station Road, Thurstaston.

It will take place from 12pm – 4pm and include raffles, donkey rides and makeovers.
That is Williams story please watch his video, it is heartbreaking to think all theses lovely youngsters are not going to live much past the age of twenty This is the link :- http://www.youtube.com/watch?v=yoKPBJhDONc It is called Fix You & William Duchenne.

When you've watched this video if you can see through the tears go to the epetition page at

frown http://epetitions.direct.gov.uk/petitions/14427 The petition is not going too well as yet so if you decide to sign include all members of your family.

There is also a web page with an appeal to buy a song off I tunes for 99p the link to which is http://www.savewilliamduchenne.co.uk/

Sorry if this is a long and rambling post but I was touched and believe many of you will want to help even if you only sign the petition.
This story is also an illustration that we should be grateful for what we have and that there is always someone worse off than youself.

Top
Local News : Advertising
Click me for more Information......


Looking for a Service / Tradesman? Look in our Local Business Directory. Click Me
#707009 - 6th Jul 2012 11:48am Re: The Heart breaking story of William McGee [Re: goodoldphil]
pokerchamp Offline
Wise One

Registered: 29th Aug 2011
Posts: 820
Loc: wallasey
very brave woman,hope she gets enough people to sign,good luck.

Top
#708179 - 10th Jul 2012 1:02pm Re: The Heart breaking story of William McGee [Re: goodoldphil]
Spiritdancer Offline
Member

Registered: 14th Jun 2012
Posts: 55
Loc: New Ferry, Wirral
That story is so sad.....can't find any words to follow that save that I shall copy it to my facebook in the hope that it will help Kelly get more support.
Thank you for posting this.
_________________________
"The beauty in our hearts transforms the world around us"

Top
#708180 - 10th Jul 2012 1:10pm Re: The Heart breaking story of William McGee [Re: Spiritdancer]
yewgarth Offline
Forum Addict

Registered: 2nd Nov 2008
Posts: 1781
Loc: new ferry
Signed.

Top

Moderator:  Mod 
Random Wirral Images

Click to View Topic.
Newest Topics
Offset number plates
by venice
Yesterday at 01:24 AM
What does this all mean?
by venice
22nd Mar 2017 12:20pm
black contiboard locally?
by fish5133
21st Mar 2017 9:30pm
Port Sunlight
by alan128
21st Mar 2017 10:09am
Council tax bill for this year 2017
by keef666
20th Mar 2017 10:25pm
For Sale & Free
Genuine Canada Goose Men's Chilliwack Jacket - L
by Liverpooltiger
Yesterday at 01:14 PM
Nail Varnish Stands X 2 (holds 50 in each one)
by j_demo
20th Mar 2017 5:49pm
Ipad
by madrob
19th Mar 2017 5:15pm
windows 7 64bit pc
by brady
18th Mar 2017 4:49pm
Petrol Lawnmower to purchase
by saltytom
18th Mar 2017 8:42am
Featured Member
Registered: 10th Apr 2012
Posts: 18
Newest Members
Monkeyboyliam121, andreap, LairdLad, HollandGj, petaann
12247 Registered Users
Today's Birthdays
No Birthdays
New Wirral Info
What does this all mean?
by venice
22nd Mar 2017 12:20pm
black contiboard locally?
by fish5133
21st Mar 2017 9:30pm
Port Sunlight
by alan128
21st Mar 2017 10:09am
Council tax bill for this year 2017
by keef666
20th Mar 2017 10:25pm
What happened to Tranmere car bootie?
by MikeT
18th Mar 2017 6:27am
News : New Topics
Incident at Westminster
by granny
22nd Mar 2017 3:40pm
Martin Mcguinness dies
by Dilly
21st Mar 2017 9:29am
British troops to Estonia
by fish5133
18th Mar 2017 8:16am
Unusual Phone calls
by granny
16th Mar 2017 3:53pm
Thanks
by Christinerowland
14th Mar 2017 8:11pm
New Enthusiast Forums
Offset number plates
by venice
Yesterday at 01:24 AM
File too large
by Dilly
20th Mar 2017 10:41am
ford focus 1.6 t reg rattling
by Little_B
19th Mar 2017 11:02pm
Alloys refurb and colour change. The Wheel Deal.
by TheComputerLab
18th Mar 2017 9:17am
Has anyone fished
by Habdab
17th Mar 2017 8:43pm
(Views 24hrs)Trending Newest Topics
Wirral Sunrise Sunset
Sunrise Fri 6:02am
Sunset Fri 6:33pm
Local Time Fri 3:49am
WikiWirral Can . . . .