Welcome to WikiWirral, sharing is what we do best.
Forum Statistics
Posts1,011,781
Topics74,727
Members12,821
Forums66
Posts in last 24hrs31
Most Online7,831
Apr 8th, 2013
Who's Online Now
56 registered members (adrianb, 11 invisible), 1,103 guests, and324 spiders.
Key: Admin, Global Mod, Mod
Social Media : Follow Us


Popular Topics(Views 7days)
New General Forums
£5 Note with AK47 serial number
by GaryFromWirral. 16th Dec 2018 2:28am
Egyptian Tomb
by granny. 16th Dec 2018 12:20am
snowmen?
by locomotive. 14th Dec 2018 7:22pm
Looking for Gamers and New Members
by WargamerNik. 11th Dec 2018 10:21am
New Wirral History
Medieval Wirral.
by granny. 12th Dec 2018 11:02am
Carr House, Moreton
by granny. 11th Dec 2018 10:42pm
Bromborough - Marfords Estate
by billy_anorak59. 10th Dec 2018 12:35pm
762 Whitt's End Wine & Cocktail Bar 43 Market Stre
by derekdwc. 29th Nov 2018 11:15pm
758 Withens Lane Sports & Social Club
by derekdwc. 29th Nov 2018 11:11pm
Forum Tips
Photo Gallery Forums
WW1 Monument, Birkenhead
No more bridge, never be the same
Topic Replies
Border, no Border. Deal, no Deal
by diggingdeeper. 18th Dec 2018 8:28pm
What song are you listening to?
by casper. 18th Dec 2018 7:32pm
Turkey
by fish5133. 18th Dec 2018 6:27pm
Coventry
by fish5133. 18th Dec 2018 6:12pm
Can Anyone Recommend A Mobile Mechanic
by fish5133. 18th Dec 2018 6:06pm
Levers Causeways
by adrianb. 18th Dec 2018 2:49pm
Car batteries
by cools. 18th Dec 2018 11:51am
2x PS4 Dualshocks & Charger Stand
by Catsick. 18th Dec 2018 10:03am
Nasty Crash Storeton Lane
by granny. 18th Dec 2018 12:58am
December
M T W T F S S
1 2
3 4 5 6 7 8 9
10 11 12 13 14 15 16
17 18 19 20 21 22 23
24 25 26 27 28 29 30
31
Recent Posts : What's On ?
Coventry
by fish5133. 18th Dec 2018 6:12pm
Levers Causeways
by adrianb. 18th Dec 2018 2:49pm
Previous Topic
Next Topic
Print Topic
Rate Topic
The Heart breaking story of William McGee #707006
6th Jul 2012 10:37am
6th Jul 2012 10:37am
Joined: Sep 2010
Posts: 241
Eastham
G
goodoldphil Offline OP
Addict
goodoldphil  Offline OP
Addict
G
Joined: Sep 2010
Posts: 241
Eastham
Wirral mum hopes video will help save son's life
I read this story in the Wirral Globe this week and felt really sorry for this lovely young boy and his family and decided to give them a bit more publicity by posting it on this forum to give more people the opportunity to help them.

A WIRRAL mum, whose little boy has a severe muscle wasting disease, is hoping an internet video will save his life.
Kelly Magee, from Prenton, has posted a video on YouTube to educate viewers on her two-year-old sons condition, Duchenne Muscular Dystrophy, in the hope that they will sign a Government petition.
The 32-year-old is hoping the four-minute montage, which is set to Coldplay's 'Fix You', will tug on people's heartstrings and encourage them to back her petition to fund research into the rare condition.
And Kelly is desperate to spread the word about Duchenne's and highlight the impact it has on its sufferers, including her son William.
She said: "We found out about William's condition last year after he was taking longer to learn to walk and kept falling over.
"I immediately threw myself into fundraising and raising awareness as few people know about it.
"Our petition is basically to get the Government to fund research into Duchenne's.
"It's possible that once the money is there, it could take just a couple of years to find a cure. However we need 100,000 signatures for the matter to even be considered in Parliament so I came up with the idea of a YouTube video.
"The video shows children at different stages of the disease. It's very emotional and heartbreaking to watch but that's what you need to do to make people think about it.

"We managed to get permission from Coldplay to use their song which adds to the impact of the montage."
Duchenne Muscular Dystrophy is a progressive, aggressive muscle wasting condition which is most common in boys.

Symptoms usually begin in the legs and pelvis before the disease slowly takes away all use of the body's muscle, leading to eventual death.
And Kelly, who is also mother to eight-year-old Elizabeth, said her familys world has been rocked by William's diagnosis but is hoping other parents will support her plight.
She said: "There are around 2,500 children in the UK with the condition. It seems like such a small number but it is horrific and is guaranteed death.

"I would say to other mums out there to imagine waking up every morning and finding out that someone you love has passed away.

"I feel like I am grieving every day for William, grieving for what he has already lost and grieving for his future he will never be able to give me grandchildren, get married or play football with his friends.

"As a mother, I feel an enormous sense of guilt for also giving my daughter a little brother with this condition.

"She absolutely adores him but how do I explain to her what may or may not lie ahead for him?

"I am hoping that enough people will watch the video and follow the link to sign the petition we need their help so much."

A family fun day will be held in aid of Duchenne Now on August 19 at White's Farm, Station Road, Thurstaston.

It will take place from 12pm 4pm and include raffles, donkey rides and makeovers.
That is Williams story please watch his video, it is heartbreaking to think all theses lovely youngsters are not going to live much past the age of twenty This is the link :- http://www.youtube.com/watch?v=yoKPBJhDONc It is called Fix You & William Duchenne.

When you've watched this video if you can see through the tears go to the epetition page at

frown http://epetitions.direct.gov.uk/petitions/14427 The petition is not going too well as yet so if you decide to sign include all members of your family.

There is also a web page with an appeal to buy a song off I tunes for 99p the link to which is http://www.savewilliamduchenne.co.uk/

Sorry if this is a long and rambling post but I was touched and believe many of you will want to help even if you only sign the petition.
This story is also an illustration that we should be grateful for what we have and that there is always someone worse off than youself.



Google Ads
Re: The Heart breaking story of William McGee [Re: goodoldphil] #707009
6th Jul 2012 10:48am
6th Jul 2012 10:48am
Joined: Aug 2011
Posts: 820
wallasey
P
pokerchamp Offline
Wise One
pokerchamp  Offline
Wise One
P
Joined: Aug 2011
Posts: 820
wallasey
very brave woman,hope she gets enough people to sign,good luck.

Re: The Heart breaking story of William McGee [Re: goodoldphil] #708179
10th Jul 2012 12:02pm
10th Jul 2012 12:02pm
Joined: Jun 2012
Posts: 55
New Ferry, Wirral
Spiritdancer Offline
Member
Spiritdancer  Offline
Member
Joined: Jun 2012
Posts: 55
New Ferry, Wirral
That story is so sad.....can't find any words to follow that save that I shall copy it to my facebook in the hope that it will help Kelly get more support.
Thank you for posting this.


"The beauty in our hearts transforms the world around us"
Re: The Heart breaking story of William McGee [Re: Spiritdancer] #708180
10th Jul 2012 12:10pm
10th Jul 2012 12:10pm
Joined: Nov 2008
Posts: 1,781
new ferry
yewgarth Offline
Forum Addict
yewgarth  Offline
Forum Addict
Joined: Nov 2008
Posts: 1,781
new ferry
Signed.


Moderated by  Mod 

Random Wirral Images

Click to View Topic.
Newest Topics
Car batteries
by cools. 18th Dec 2018 10:27am
Turkey
by venice. 18th Dec 2018 9:52am
Levers Causeways
by adrianb. 18th Dec 2018 7:37am
Nasty Crash Storeton Lane
by fish5133. 17th Dec 2018 10:43pm
Can Anyone Recommend A Mobile Mechanic
by rhoobarb2002. 17th Dec 2018 11:19am
For Sale & Free
2x PS4 Dualshocks & Charger Stand
by Catsick. 17th Dec 2018 3:32pm
Panasonic HC VX870 4K camcorder
by gerrymoore. 11th Dec 2018 8:36am
Sea fishing shelter
by paul110180. 9th Dec 2018 10:13am
Pool table etc 25x 55" approx
by Snodvan. 7th Dec 2018 7:13pm
Hotpoint slimline dishwasher free
by silvertigra. 6th Dec 2018 12:33pm
Member Spotlight
smitty
smitty
Hawarden
Posts: 549
Joined: July 2014
Show All Member Profiles 
Newest Members
podgie, Dee48, nigeL45, Paowie1, LairdArrowe
12821 Registered Users
Today's Birthdays
No Birthdays
New Wirral Info
Watch battery tool
by madrob. 15th Dec 2018 4:24pm
Coventry
by fish5133. 13th Dec 2018 10:22pm
Christmas
by granny. 4th Dec 2018 3:24pm
Bollards
by fish5133. 2nd Dec 2018 11:10pm
Contacting an old school friend?
by gerrymoore. 1st Dec 2018 11:29am
News : New Topics
Nasty Crash Storeton Lane
by fish5133. 17th Dec 2018 10:43pm
Rudolph has been spotted !
by granny. 16th Dec 2018 10:07am
Chester Zoo Fire
by lincle. 15th Dec 2018 1:06pm
Mobile phone probs
by cools. 6th Dec 2018 5:58pm
Border, no Border. Deal, no Deal
by granny. 5th Dec 2018 11:57am
New Enthusiast Forums
Car batteries
by cools. 18th Dec 2018 10:27am
Turkey
by venice. 18th Dec 2018 9:52am
Levers Causeways
by adrianb. 18th Dec 2018 7:37am
Can Anyone Recommend A Mobile Mechanic
by rhoobarb2002. 17th Dec 2018 11:19am
Phones
by venice. 9th Dec 2018 11:39pm
Popular Topics(Views 24hrs)
58 Turkey
Wirral Sunrise Sunset
Sunrise Wed 8:25am
Sunset Wed 3:53pm
Local Time Wed 1:49am
Powered by UBB.threads™ PHP Forum Software 7.6.1.1