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hi im hoping one of you can help ive been trying for a long time to get my daughter help she is now 11 after doctors deciding she did not have adhd they have put her through many tests but not the aq test which i found on line and asked her to do she scored 34 which if what i have read is very high it has been many months since her last appointment and quiet frankly im at breaking point
any advice would be greatfully recevied

hi there

what are school saying? are they supportive in getting help or does she have any IEPs, etc?
Try not to take the AQ test too seriously, I took it and I got 37 on 3 different occassions!!! I swear it hates me
My aspergers son took it and only scored 17 if you met him, you would find that absolutely hilarious, you can't get anymore aspies than he is, really.
My dd would probably score highly too as she does have many traits BUT shes learnt to live with it and stand her ground (not that I'm saying thats the answer) and shes managed to do really well through her gcses with no additional support.

You really need to have someone else, prefably a class teacher or a professional who has seen the child for a significant while to sort of confirm your findings/write a report before they usually do any referrals to any professionals.
And then they will have a barrage of assessments and then agree to all meet at a multi-discplinary meeting before making any kind of a diagnosis. They usually need to have everyone (pead, ed psych, CAHMS, OT, SALT, any behavioural specialists, etc etc) agreeing with the same diagnosis.

Sorry its not a positive post for you

http://www.channel4embarrassingillnesses.com/features/take-the-autism-test/

I got 19

Just an update my daughter has been on melatonin now for a month and it has been a godsend she is still having her meltdowns but the dont seem to last as long! Had a tack meeting in the school and the teacher has told us she needs permanant one on one! So portec is getting involved now! She has an appointment tomorrow with the incontinent nurse to see if i can get help as she is 4 now and still in nappies and she is perminantly in night time nappies as the largest nappies no longer fit and £3.00 for 10 nappies dont go far! Update you all tomorrow with what they say!

Mistybluered

Yayyy for finally getting some help and support that you need.
Did they decide at the TAC meeting wether to put in for a statutory assessment (first rung on the ladder to getting a statement)? As getting a statement would ensure and pay for dd to always have the same consistent 1:1 supporter.
Our Portex was fabulous! She helped to make sure we got everything in place for my little boy, including assessments with OT (to get his Maclaren Major Needs buggy and to having specialists equipments installed around the house). Ours was based with SESS (special education support service based at Bromborough) so she might be the same portex we had.

We also we got the free nappies from the incontinence services (you get them in bulk whenever you need them, you just ring up, give them your customer number (which you'll eventually get when accepted) and then they deliver them within a day or two).

How did you do with the DLA forms hun? Portex will be able to help you with them in case you didn't get far...

Never had a very good christmas as daughter didn't like the hype! anyone mentioned Christmas she would have a meltdown! She didn't want presents off Santa she didn't want the tree or decorations up! But come Christmas morning and she seen the presents and opened her presents she seemed to settle down! I have never found it so hard to buy presents for my four year old! As she doesn't play with any toys except console games as it is mentally stimulating for her! But we already owned all the consoles that were out! But she seemed happy with what she got lol! Christmas is very stressful normally but having a dear daughter with her problems makes Christmas twice as stressful

have you considered buying her a pet, couple of kids by me are autistic / adhd they love to come and play with my dogs. maybe next year she could be involved with buying presents for her pet, wrapping them and maybe decorating the tree for her pet.
just an idea, hope its of help.
welcome anytime to introduce her to my dogs,

I have had 3 dogs and she never bothered with them and the 3 dogs ended up turning on her do I had to rehome them! Also I tried with kittens and she started to throw them over the banister! Luckily she never hurt them so I had to rehome them too! So gave up in the end!

Hi snickas, never got on well with the incontinence nurse as she wants to try and get her out of them so I think it was a waste of time! Portex called in to see us at home just before Christmas! I have another tack meeting with them all at school when they go back to school! So fingers crossed we might find out more then