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Dilly #1041856 26th Jul 2017 11:04am
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I think like the doctors say a hospice would be best. They have everything to hand and facilities to make this poor babies passing as painfree and stress-free as is possible. Never been in a hospice but I have heard they have beautiful peaceful rooms where parents can stay for as long as they wish even when death comes. These parents would have support from the staff who are well used to these terrible tragedies. So so sad....

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fish5133 #1041857 26th Jul 2017 11:28am
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Originally Posted by fish5133
Originally Posted by Spellbinder
Originally Posted by fish5133
Not going to make an ounce of difference to let the poor baby home to die.



Evidence please.



Deads dead no matter where it happens doesnt require evidence other than a walk around any cemetery


You have pontificated that it won't make "an ounce of difference" to let the baby die at home. It's not a question of "dead's dead" - it's a matter of what the baby will experience before death. So - what is your evidence that allowing the baby to die at home won't make "an ounce of difference"?

Dilly #1041867 26th Jul 2017 8:00pm
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What will the baby experience before death?

fish5133 #1041874 27th Jul 2017 5:13am
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Originally Posted by fish5133
What will the baby experience before death?


Hopefully, with proper care and attention, a minimum of pain and discomfort.

Dilly #1041876 27th Jul 2017 7:56am
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This to me has just been a legal circus, one thing gets decided and then something else is argued about in court right down to where he should be allowed to die. It for me has become a little bit more about the legal side of things than what is actually better for for the poor child.

Spellbinder #1041879 27th Jul 2017 9:34am
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Originally Posted by Spellbinder
Originally Posted by fish5133
What will the baby experience before death?


Hopefully, with proper care and attention, a minimum of pain and discomfort.



And thats part of the problem....having to put your trust in what the experts say. Had to make that decision over my late mum .one expert at the hospital saying let her die and another saying a fairly routine procedure will keep her alive. I didnt want our decision to be the end of her life. She had the procedure and lived a few more years but quality of life was vitually nil and it extended her suffering.
More recently ive had to sit in on a hospital tribunal and the cards are stacked in favour of the experts when it comes to convincing the panel.
In charlies case then the right to die at home seems to only be objected on on the grounds of "comfort suffering and pain".if he can be transferred to a hospice to die then i dont see why he couldnot have been allowed home...at some point his life support will possibly be switched off . pain relief i presume can be ministered at home.



fish5133 #1041882 27th Jul 2017 10:15am
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Originally Posted by fish5133
Originally Posted by Spellbinder
Originally Posted by fish5133
What will the baby experience before death?


Hopefully, with proper care and attention, a minimum of pain and discomfort.



And thats part of the problem....having to put your trust in what the experts say. Had to make that decision over my late mum .one expert at the hospital saying let her die and another saying a fairly routine procedure will keep her alive. I didnt want our decision to be the end of her life. She had the procedure and lived a few more years but quality of life was vitually nil and it extended her suffering.
More recently ive had to sit in on a hospital tribunal and the cards are stacked in favour of the experts when it comes to convincing the panel.
In charlies case then the right to die at home seems to only be objected on on the grounds of "comfort suffering and pain".if he can be transferred to a hospice to die then i dont see why he couldnot have been allowed home...at some point his life support will possibly be switched off . pain relief i presume can be ministered at home.




Well put, and had there been intervention initially, things may have been very different for little Charlie.

Yes, Dilly has a point or two , and the parents have clung on to every tiny bit of hope and light that they saw. Who on earth can blame them for that ?

I originally thought that Charlie should be allowed home, and still do really, however I imagine the authorities are as much concerned about the aftermath for his parents who I think will need as much support as possible. If they leave the hospital/hospice they probably wouldn't be allowed back for the aid of their own support and recovery.

Time is closing in on them and I imagine it won't seem real, they won't really be able to come to terms very easily particularly after such a long drawn out case. The whole thing makes the heart sink, and I'm so sorry for this little family.

Last edited by granny; 27th Jul 2017 10:18am.

Humankind has not woven the web of life. We are but one thread within it. Whatever we do to the web, we do to ourselves. All things are bound together. All things connect.
~Chief Seattle
Dilly #1041897 28th Jul 2017 7:08am
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So many problems for the parents to bring him home, not least the simple physical aspect of getting the machines through the house door. Apparently this would be impossible without structural alterations. Even taking him from the ambulance to the door would cause problems and he would have to come off the ventilator for that period.Then there is the absolute requirement for specialist medical staff to be on hand 24/7.
Terribly sad case but I think he should be allowed to die in peace where he is.

Salmon #1041904 28th Jul 2017 8:51am
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Originally Posted by Salmon
So many problems for the parents to bring him home, not least the simple physical aspect of getting the machines through the house door. Apparently this would be impossible without structural alterations. Even taking him from the ambulance to the door would cause problems and he would have to come off the ventilator for that period.Then there is the absolute requirement for specialist medical staff to be on hand 24/7.
Terribly sad case but I think he should be allowed to die in peace where he is.


My sentiments too Salmon, dare I say I think the parents have been a wee bit selfish with a lot of things being based on what they want, shouting out at hearings and walking out, I don't know what it must be like for them, and they must feel frustrated but throughout those caring for him have felt the brunt of everyone's anger for doing their best, outside influences from the USA and the Vatican have only made things worse and the whole thing is being dragged down to the level of a cheap TV programme, let the poor little mite go in peace without all the upset and demonstrations and be remembered for the little fighter he is.

Dilly #1041907 28th Jul 2017 10:01am
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The demonstrators with their banners and misplaced opinions served to do nothing. They had no acsess to the medical records of the child so they were basically pretending they knew better than they medical profession.
Also I think the legal team for the parents were happy to go for appeal after appeal, more cash in the till ! . Let's all hope he is now left to pass in peace.

fish5133 #1041910 28th Jul 2017 11:30am
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Originally Posted by fish5133
Originally Posted by Spellbinder
Originally Posted by fish5133
What will the baby experience before death?


Hopefully, with proper care and attention, a minimum of pain and discomfort.



And thats part of the problem....having to put your trust in what the experts say. Had to make that decision over my late mum .one expert at the hospital saying let her die and another saying a fairly routine procedure will keep her alive. I didnt want our decision to be the end of her life. She had the procedure and lived a few more years but quality of life was vitually nil and it extended her suffering.
More recently ive had to sit in on a hospital tribunal and the cards are stacked in favour of the experts when it comes to convincing the panel.
In charlies case then the right to die at home seems to only be objected on on the grounds of "comfort suffering and pain".if he can be transferred to a hospice to die then i dont see why he couldnot have been allowed home...at some point his life support will possibly be switched off . pain relief i presume can be ministered at home.


Thankfully we have not yet reached the position where decisions like these are based on your presumptions.

Dilly #1041912 28th Jul 2017 1:27pm
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I find it extremely worrying that when the courts and medics have given up on keeping the child alive they still seem to take possessive control. The parents have not lost custody, they are not absent, they are the legal guardians.


We don't do charity in Germany, we pay taxes. Charity is a failure of governments' responsibilities - Henning Wehn

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Dilly #1041914 28th Jul 2017 1:45pm
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Charlie is the most important thing in this DD, I really feel for the parents and understand their need to keep him around but surely he should be allowed to pass peacefully , without pain, and obviously with mum and dad and family around. A hospice is well used to these tragedies and have everything to hand and staff to make his passing as best as can be. It must be all about him and think now they should stop fighting and be with him in whatever time he has left. Very hard but let him go as think the medical team know what's best for him . Poor babe.

Dilly #1041916 28th Jul 2017 2:03pm
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You know you follow a very sad case like this and then you see on news yet another child murdered by parent. That poor little 2 year old girl smothered by so called mother just to get back at the father!!! Those poor parents of Charlie wanted so much for him to live and yet this monster snuffing out a healthy babys life.Its so wrong, find these cases so upsetting and seem to be happening so much more.

Dilly #1041917 28th Jul 2017 3:33pm
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Cools I think I heard this morning that the evil cow got 15 years. Well for me she should be strung up.

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